Gavin Stevens, was born with a very rare genetic retina condition called Leber's Congenital Amaurosis (LCA). There is no cure, yet. Research is promising, and reminds us to move forward with fundraising for a cure. There are only 150 individuals in the United States with this genetic mutation condition.
4 years ago, we were told Gavin's gene was unknown and hope and pray for a miracle. The miracle happened. We can openly and actively pursue treatment for 4 yr old Gavin Robert Stevens, who carries the 18th known gene to cause Leber's Congenital Amaurosis (LCA-NMNAT1).
It's because of our amazing research geneticists, Dr. Chiang, here in America, as well as Beijing, China that Gavin's gene was found. But it will largely be due to our GROUPIES why a cure may in fact happen for our boy! Those who support near and far, and our family who is by our side every step of the way. With God's grace, we are the reason we will be able to make a substantial donation towards this research, that can one day allow Gavin to see things he never has.
Please contact one of us if you have any questions or suggestions. We would love to hear from you!
“There is no better way to thank God for your sight than by giving a helping hand to someone in the dark."
- Helen Keller
Troy & Jennifer Stevens
Parents of Gavin, and Founders of GRSF